Concerned father creates app for chronic illness management to help his sons manage Cystic Fibrosis

Genia is an innovative mobile patient support system tailored for young individuals living with cystic fibrosis and other long-term illnesses. It aims to improve health management and enhance communication among patients, their families, and healthcare teams by placing the young person at the center of the decision-making process. The app enables users to track their health data, transforming their experiences into actionable insights that healthcare providers can easily understand, ultimately leading to more personalized care. Through the app, Andreas Hager, the innovator, seeks to enhance health management among young people and promote a culture of respect in healthcare, where all individuals—patients, families, and healthcare providers—are treated with dignity and consideration.

Key features include the ability to create a medication list and document the effects of treatments, helping users stay organized and informed about their health. The app encourages logging daily feelings and observations, facilitating the identification of patterns that can be shared with healthcare professionals during appointments. Before medical visits, patients can generate comprehensive reports summarizing their health status, ensuring discussions focus on the most relevant issues.

Genia is designed for observations, reflections, and sharing within families living with long-term illness while allowing patients to control what information they share with healthcare providers. This information can be co-created into care goals and plans, promoting mutual learning and shared decision-making.

As a secure digital platform, Genia allows individuals to manage their health information privately. Users maintain complete control over their data, deciding what to share and with whom, which fosters meaningful collaboration with healthcare providers. This emphasis on privacy and user empowerment enables patients to actively engage in their health management while ensuring their sensitive data remains secure and confidential. Currently, the Genia patient support system is in early use at all four cystic fibrosis centers in Sweden and is integrated with other health information systems used in clinical practice.

The company was founded in 2013 and is based in Bromma, Sweden.

Adapted from:
https://ki.se/en/lime/research-groups-and-units-at-lime/medical-manageme...
https://www.crunchbase.com/organization/genia-f49e

For further information:
https://www.genia.se/