Terms of Service

The Patient Innovation Vision

We developed the Patient Innovation website located in https://patient-innovation.com/ with the User in mind. Please take a moment to familiarize yourself with the content of this document and let us know if you have any questions.

 

Our research has shown that patients of chronic diseases have developed a significant number of innovative treatments and medical devices to help them cope with their health condition. For example, in the specific case of rare diseases, some patients have developed innovative solutions for themselves. Individuals who have to deal with long-lasting conditions and everyday challenges often develop valuable innovations in medical treatments and devices to help them cope with their condition and individual needs. These innovations improve their quality of life and may provide treatment for their symptoms and diseases, sometimes even saving their own lives. However, these innovations usually occur behind closed doors and might never be known or used by anyone else. We are building this website to diffuse solutions and knowledge amongst patients with similar needs since we believe this could improve the lives of many others.

 

This Website is an international, multilingual, totally free-of-charge venue for patients and caregivers of any disease to share their innovations within the community. This Website is the result of the joint research and international cooperation of scholars (from
the health sciences, management, economics, engineering and law), healthcare practitioners and institutions that are committed to help promote knowledge and possible solutions that may be able to improve Patients’ well being. Patients or caregivers deal with challenges imposed by their health condition and are free to share in this Website proposed solutions (henceforth referred to as “solutions”). In this context, solutions include (but are not limited to) new or modified devices or medical aids, strategies, behaviors, treatments, or low-cost alternatives to existing solutions. They may be fully developed, partially developed, or just an idea. The knowledge is valuable for the community even if the solutions did not work as intended: other patients may jump-in to give their feedback or improve them.

 

This website promotes openness and transparency by giving individuals greater power to share their solutions and connect with each other to live a better life. Achieving this vision should be constrained only by limitations of law, technology, and evolving social norms.

 

Disclaimer

  • The Website is self-managed by the community of contributors, and neither the Owner nor any other organization or institution linked to the Website is responsible for the solutions contributed, as well as for any comments and recommendations posted.
  • We explicitly point out that these solutions may be contributions of laypeople and are of one's own imitation, not necessarily validated by any formal and authorized body, and are not known to have been medically tested by professionals nor are they known to be scientifically accurate, effective
  • The Website is self-managed by the community of contributors and the Website management team does not control, nor monitor, nor is responsible for the quality of the submitted solutions (ideas and concepts) or recommendations. Notwithstanding, if the Website management team gains knowledge of any content that infringes the Terms of Service below it may choose to remove such content.
  • No individual or organization related to the Website is liable for damages resulting from the reproduction, imitation of solutions or the implementation of recommendations, namely for any serious health consequences suffered by the User, including death.

Terms of Service

This agreement was written in English (US). To the extent any translated version of this agreement conflicts with the English version, the English version shall prevail.

 

Patient Innovation uses an automatic translation service. We are not responsible for any consequences that may arise from incorrect translation of solutions, recommendations or any other information posted on the Website.

 

Date of Last Revision: February 6, 2014

 

These Terms of Service apply to the Patient Innovation website, located in https://patient-innovation.com/ and accessible either directly or through a Facebook application.

 

These Terms of Service (also referred as Agreement) derive from the Patient Innovation Vision, and govern all use of the Patient Innovation website (herinunder, the Website) and its services, as well as our relationship with Patients, Users and others who access or interact with this website (henceforth, the Users).

 

Please read this Agreement carefully before accessing or using the Website. Please note that by using or accessing this website you fully and knowingly agree to these Terms of Service. If you do not agree to all the terms and conditions of this agreement, then you may not access the Website or use any services. The Website is available only to individuals who are at least 18 years old.

 

The Website and all of its contents are the property of Universidade Católica Portuguesa (UCP) henceforth referred to as the Owner.

AGE RESTRICTION

  • Registration and participation on the Sites is restricted to those individuals over 18 years of age, emancipated minors, or those who possess legal parental or guardian consent, and are fully able and competent to enter into the terms, conditions, obligations, affirmations, representations and warranties herein.
  • We do not knowingly collect personal information from people under 18 years old. If we learn that we have collected the personal information of a person under 18 years old, we will take steps to delete the information as soon as possible.

ACCESS TO THE WEBSITE

  • Without prejudice to the age restriction mentioned above, the only prerequisite for participation in submitting a solution, seeing the solutions of others, or otherwise using the Website is to register in the Website.

INTELLECTUAL PROPERTY AND USAGE RIGHTS

  • By submitting your solutions, you acknowledge and accept that your solutions can be freely viewed, transmitted and used by others without the payment of royalties, reimbursements or any other type of compensation by any individual who accesses the Website.
  • If you would like to protect your intellectual property, please consider doing so before submitting it to this application and sharing it with others.
  • By sharing any solutions, data or any other information on the Website, you acknowledge and accept that it may be used as a part of academic research by the institutions that contributed to design and implement the Website, namely for obtaining a better understanding of innovation amongst patients,
  • By submitting a solution to the Website the contributor agrees to grant, free of charge, the following rights with no limit in duration: unrestricted and irrevocable use, reproduce and distribute the contribution, especially in radio and television, publications, promotional materials, printing works and the Internet.
  • The Owner or any other company related to it or to the Website are not liable for any violations of the User’s intellectual property rights.

CREATION OF A DISEASE PAGE

  • Any registered user can request the creation of a Disease Page. This request will then be assessed by the team and will either be:
    • Accepted and the disease page will be created;
    • Rejected in the case the disease does not exist in the ICD10 list or in other reputed databases of conditions; or
    • Rejected for other reasons, namely in case the disease page already exists in the Website.

USER RESPONSIBILITY

  • People who contribute with their solutions and comments to the Website agree to take personal responsibility for all issues related to their posts and comments.

REMUNERATION

  • A claim for financial or other compensation with respect to the designers, implementers, and providers of the Website does not apply.
  • In a further development of a solution or in the subsequent recommendations, or solutions, the contributors are not entitled to financial or other compensation by patient-innovation.com designers and providers.
  • If a commercial use is desired, an individual agreement between the submitter and the potential implementation partners is necessary outside of the control/reach of this Website and with no involvement from the Patient Innovation team/brand

APPLICABLE LAW AND JURISDICTION

  • These Terms of Service shall be deemed to have been executed in Lisbon, Portugal, and are governed by and construed in accordance with the internal substantive and procedural laws of Portugal without regard to conflict of laws or principles.
  • Unless expressly stated otherwise, all disputes arising out of or relating in any way to this Agreement shall be resolved by binding arbitration in Lisbon, Portugal using the applicable rules of the European Arbitration Association, and judgment on the award rendered may be entered in any Court in Portugal.
  • The user consents to the personal jurisdiction and venue of such courts, expressly waive any objection to such jurisdiction and venue, and further consent that any process, notice of motion or other application to such courts or a judge thereof may be served outside of Lisbon, Portugal by registered or certified mail or by personal service, provided that a reasonable time for appearance is allowed.

CHANGES TO THE TERMS OF SERVICE

  • The Owner reserves the right to, unilaterally and at its sole discretion, change, modify, add or remove parts of these Terms of Service at any time and without any other publicity than the update of this webpage.
  • It is the user’s responsibility to check these Terms of Service periodically for changes.
  • The continued use of the Website will suffice as acknowledgement and acceptance of any changes made to these Terms of Service.
  • Nevertheless, changes to these Terms of Service may be publicly shared on the news stream of the Website and some changes may require express acknowledgement or acceptance of the user. The User understands that further access to the Website and to the user’s account may be denied if no such acknowledgment or acceptance is given.

Patient Innovation and the Owner are not responsible for any incorrect or inaccurate content posted on the Website or in connection with the Services. Profiles created and posted on this may contain links to other websites, and we are not responsible for the content, accuracy or opinions expressed on such websites. Under no circumstances shall Patient Innovation or the Owner be responsible for any loss or damage, including personal injury or death, resulting from use of the Services, attendance at any Patient Innovation event, from any content posted on or through the Services, or from the conduct of any users of the Services, whether online or offline. The Services are provided “AS-IS” and as available and Patient Innovation and the Owner expressly disclaim any warranty of fitness for a particular purpose or non-infringement. Patient Innovation cannot guarantee and does not promise any specific results from use of the Services. IN NO EVENT SHALL PATIENT INNOVATION BE LIABLE TO YOU OR ANY THIRD PARTY FOR ANY INDIRECT, CONSEQUENTIAL, EXEMPLARY, INCIDENTAL, SPECIAL OR PUNITIVE DAMAGES, INCLUDING LOST PROFIT DAMAGES ARISING FROM YOUR USE OF THE SERVICES, EVEN IF PATIENT INNOVATION HAS BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGES.

Privacy Policy

1. How do we handle your data?

  • When registering in the Website, the following information is required:
    • User Name (not necessarily your real name)
    • Email
    • Facebook (optional)
  • When using the Website, the user will provide the following information:
    • Name of the disease and proposed solution and/or
    • Comments regarding existing proposed solutions
  • This Website does not have the possibility nor the aim of validating the “real identity” of users since pseudonyms or nicknames may be freely used to login and no identification is required.
  • The data will be stored through this Website at the Innosabi GmbH premises and subject to the processing requirements of the Portuguese Data Protection Act.,
  • The personal data in this Website is explicitly for users within this community and for research purposes. In the case of research purposes, the data will be “anonymized” before being analyzed
  • Access to or deletion of personal data (username information as well as all the information (proposed solutions, comments, etc…) that were originated by this username) can be initiated upon written request and at any time in relation to a specific portion of data or eventually all of it. This request has to be addressed to
    Patient Innovation
    Católica - Lisbon School of Business & Economics
    Palma de Cima
    1649-023 Lisboa
    Portugal
  • By accepting this Terms of Service, the user authorizes that his data is forwarded to jurisdictions that are not within the European Union and which may or may not assure an adequate level of protection according to article 25 (2) of Directive 95/46/EC of the European Parliament and of the Council.

2. Cookies and Other Technologies

  • By using this website you acknowledge and accept that this website is using "cookies" and that they may be installed in your computer (including your smartphone, tablet or any other device used to access the Website).
  • A cookie is a small file containing a string of characters that is sent to your computer when you visit a website. When you visit the website again, the cookie allows that site to recognize your browser.
  • This technology helps us better understand user behavior, tell us which parts of our website people have visited, and facilitate and measure the effectiveness of web searches.
  • If you do not want cookies to be used, you should set your browser to block all cookies. However, it is important to remember that if you choose to do so some of our services may not function properly. For example, we may not remember your language preferences. For more information about the cookies, please refer to http://www.allaboutcookies.org.
  • The Website use the following cookies:
    • Cookie #1 – “ignite” is the cookie for the login name
    • Cookie #2 – “_pk_[…]” is the analytics cookie. It can be up to 3 cookies with a random ending
  • We treat information collected by cookies and other technologies as non-personal information. However, to the extent that Internet Protocol (IP) addresses or similar identifiers are considered personal information, we also treat these identifiers as personal information. Similarly, to the extent that non-personal information is combined with personal information, we treat the combined information as personal information for the purposes of this Privacy Policy.

If you have any questions or concerns about Patient Innovation’s Privacy Policy or data processing, please contact us at info@patient-innovation.com

Netiquette

  • We at Patient-innovation.com put great emphasis on respectful treatment among participants. These include:
    • Goal-oriented communication, i.e. meaningful and relevant discussions
    • Constructive criticism of the contributions of the other participants
    • Respect and appreciation of the other participants and their opinions.
    • If racist, adult, sexist, dehumanizing or similar remarks are reported by users, we reserve the right to remove this comment as a whole from this Website
    • As the basis of this community, the users are not allowed to reveal or disclose information from other users in this Website without the explicit agreement of the latest, or unless this information is publicly available either on the internet or other supports

We encourage contributors to post only information that to the best of your knowledge is true and went through basic validation. In addition, links to commercial solutions or similar activities shall be done by the Users on a discretionary basis when appropriate and never with the objective of marketing a device/solution tool nor forcing users to acquire such device/solution.

Since this website gives people around the world the power to publish their own solutions and stories, we provide you with guidelines regarding what type of expression is acceptable, and what type of content may be reported and removed.

  • Violence and Threats: We remove content and may escalate to law enforcement when we perceive a genuine risk of physical harm, or a direct threat to public safety. You may not credibly threaten others, or organize acts of real-world violence. We prohibit promoting, planning or celebrating any of your actions if they have, or could, result in financial harm to others, including theft and vandalism.
  • Self-Harm: We remove any promotion or encouragement of self-mutilation, eating disorders or hard drug abuse.
  • Bullying and Harassment: We allow users to share freely their solutions and stories, but take action on all reports of abusive behavior directed at private individuals. Repeatedly targeting other users with unwanted requests or messages is a form of harassment.
  • Hate Speech: We do not permit individuals or groups to attack others based on their race, ethnicity, national origin, religion, sex, gender, sexual orientation, disability or medical condition.
  • Graphic Content: When people share any solutions, we expect that they will share in a responsible manner. That includes choosing carefully the audience for the content. For graphic videos and images, people should warn their audience about the nature of the content in the video so that their audience can make an informed choice about whether to watch it.
  • Phishing and Spam: We ask that you respect our members by not contacting them for commercial purposes without their consent.
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