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Parents create million-dollar foundation to support their son with Duchenne muscular dystrophy

Shared by Gemma Tria on 2025-01-20 18:17

About the solution

In 2001, Christine and Stephen McSherry faced a life-altering diagnosis: their five-year-old son, Jett, had Duchenne muscular dystrophy (DMD), a severe and progressive condition that weakens muscles over time, often leading to loss of mobility, respiratory issues, and a significantly shortened life expectancy. Faced with this reality, the McSherrys turned their problem into action by creating a foundation as a platform for solutions.

The Jett Foundation was established to accelerate research for a cure and to provide critical support for families navigating the challenges of DMD. Initially focused on funding research, the foundation has raised over $16 million for promising biomedical advancements. Over time, they recognized that families needed more than hope for a cure—they needed centralized immediate resources and community support.

The foundation now serves as a vital instrument for addressing the daily realities of living with DMD, offering tailored educational workshops, support groups, and financial assistance through initiatives like the Jett Giving Fund (launched in 2017), which helps families afford essential medical and accessibility equipment. Another standout program is Camp Promise, a free summer camp and year-round initiative for kids, teens, and adults with neuromuscular disorders to gather at multiple locations and in virtual events, creating an inclusive community where they can connect, interact, and have fun.

By empowering families to access resources, connect with others, and bridge gaps in care, the Jett Foundation has become an essential support network, ensuring that no one faces the challenges of Duchenne alone, regardless of their location or financial situation.

Learn more about their programs:
https://www.jettfoundation.org/

This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.

DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com

About the author

Christine and Stephen McSherry founded the Jett Foundation in 2001 as a way to help families like theirs develop solutions and access resources to navigate the challenges of Duchenne muscular dystrophy. Their deeply personal mission to support their son, Jett, has inspired the foundation’s ongoing efforts to ensure families receive the care, community, and tools they need at every stage of the journey.

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