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About the solution
In 2001, Christine and Stephen McSherry faced a life-altering diagnosis: their five-year-old son, Jett, had Duchenne muscular dystrophy (DMD), a severe and progressive condition that weakens muscles over time, often leading to loss of mobility, respiratory issues, and a significantly shortened life expectancy. Faced with this reality, the McSherrys turned their problem into action by creating a foundation as a platform for solutions.
The Jett Foundation was established to accelerate research for a cure and to provide critical support for families navigating the challenges of DMD. Initially focused on funding research, the foundation has raised over $16 million for promising biomedical advancements. Over time, they recognized that families needed more than hope for a cure—they needed centralized immediate resources and community support.
The foundation now serves as a vital instrument for addressing the daily realities of living with DMD, offering tailored educational workshops, support groups, and financial assistance through initiatives like the Jett Giving Fund (launched in 2017), which helps families afford essential medical and accessibility equipment. Another standout program is Camp Promise, a free summer camp and year-round initiative for kids, teens, and adults with neuromuscular disorders to gather at multiple locations and in virtual events, creating an inclusive community where they can connect, interact, and have fun.
By empowering families to access resources, connect with others, and bridge gaps in care, the Jett Foundation has become an essential support network, ensuring that no one faces the challenges of Duchenne alone, regardless of their location or financial situation.
Learn more about their programs:
https://www.jettfoundation.org/
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com
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CAREGIVING
Social interaction
Blood Pressure Disorders
Website
In Person service
Online service
Book/Comic
Managing pain
Enhancing health literacy
Promoting self-management
Building Supportive Community Relationships
Promoting inclusivity and social integration
Enhancing Mental Health
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
Child and Adolescent Psychiatry
Dermatology
General and Family Medicine
Internal Medicine
Medical Oncology
Pediatrics
Psychiatry
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(SELF)-CARE: DRESSING: Dressing independently.
CAREGIVING
Neuromuscular Disorders
Body-Worn solutions (Clothing, accessories, shoes, sensors...)
Gait abnormalities (e.g., walking difficulties, unsteady gait)
Tremors
Difficulty coordinating movements
Stiffness or rigidity (difficulty moving)
Loss of balance
Trouble with fine motor skills (e.g., writing, buttoning clothes)
Twitching or involuntary movements (myoclonus)
Fatigue
Restoring mobility
Replacing lost limbs
Enhancing health literacy
Raise awareness
Caregiving Support
General and Family Medicine
Internal Medicine
Neurology
Pediatrics
Physical Medicine and Rehabilitation
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