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About the solution
While there are currently no cures for ALS, there are three FDA-approved treatments that may help slow down the progression of ALS for some patients. Similarly, there are over eighty clinical trials underway right now with the goal of finding effective therapies. We have created an easy solution to what is normally daunting.
Together, ALS patients and caregivers are proud to share the ALS Signal: Clinical Research Dashboard that provides all stakeholders in the ALS Community - clinicians, pharmaceutical companies, researchers, patients, caregivers and families - with comprehensive and critical information on the full scope of treatments in 80-plus trials worldwide. This dashboard will help people living with ALS access, evaluate and be empowered with information on clinical trials to take to their physicians that we hope will lead to new treatments.
By working on this tool with top neurologists around the world, the I AM ALS Promising Therapies Team - comprised of ALS patients, advocates, caregivers and families - has already helped those living with ALS to:
- Find and evaluate promising clinical trials, often the most challenging step in participation
- Initiate more informed discussions about treatments with their medical teams by arming people living with ALS with comprehensive knowledge and recent details
- Provide input to pharmaceutical companies looking for data on trial design and the scope of drugs in trials, a key to continuously improving the science.
Our intent is to empower everyone who wants to seek new treatments and share this new resource with people living with ALS around the world, offering hope and community as we rewrite the ALS story.
https://www.youtube.com/watch?v=aeLYTqx6a9w
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
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Student designs sensory pod inspired by autistic son
Autism spectrum disorder
Autism
central nervous system
Sensory Deprivation Pod
Coping with stress and other psychological demands
Relaxation
CAREGIVING
COMMUNICATION: Communicating, whether by speaking, listening, or other means
Attend Concerts/Performances
Strategy/Tip
Assistive Daily Life Device (to help ADL)
Promoting self-management
Building Supportive Community Relationships
Promoting inclusivity and social integration
Enhancing Mental Health
Improving Speech and Communication
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
Child and Adolescent Psychiatry
General and Family Medicine
Pediatrics
Psychiatry
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Susana and Joe, parents of Caui, created the platform "Vencer o Autismo" in order to reduce the negative stigma associated with autism.
Autism
Brain
Cerebellum
Website
Basic interpersonal interactions
Caregiving
Conversation
Coping with stress and other psychological demands
Family relationships
Learning
Life in community
Social interaction
Solve problems
Anxiety symptoms
Agitation
Anxiety
Nervousness
Stress
Tension
Emotional distress
Fatigue
Fluctuating mood symptoms
Mood swings
lack of motivation
social deficits
Tremor
Behavioural therapy
Relaxation therapy
COMMUNICATION: Communicating, whether by speaking, listening, or other means
CAREGIVING
Social interaction
Social Media
Website
Strategy/Tip
Enhancing health literacy
Promoting self-management
Managing Neurological Disorders
Building Supportive Community Relationships
Promoting inclusivity and social integration
To improve Treatment/Therapy
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
Child and Adolescent Psychiatry
General and Family Medicine
Medical Oncology
Pediatrics
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Memory Lane Games - Reigniting memories for those with Dementia & Alzheimer's
Dementia Alzheimer's type
Dementia
Brain
Basic interpersonal interactions
Playing
Games
CAREGIVING
COMMUNICATION: Communicating, whether by speaking, listening, or other means
App (Including when connected with wearable)
Videogame
Recovering cognitive function
Promoting self-management
Managing Neurological Disorders
Building Supportive Community Relationships
Promoting inclusivity and social integration
Enhancing Mental Health
Improving Speech and Communication
To improve Treatment/Therapy
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
General and Family Medicine
Neurology
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