- 427
- 32
- 2
- 2
- 0
- Help Ukraine
About the solution
The South Asian IBD Alliance (SAIA) is a charitable nonprofit organization dedicated to addressing the unique challenges faced by individuals with inflammatory bowel disease (IBD). Founded by a diverse group of patients, clinicians, and advocates, SAIA was motivated by the urgent need to create resources, research, and educational materials specifically tailored for individuals living with IBD in South Asia and the healthcare providers serving these communities. Recent epidemiologic studies indicate a rising incidence of IBD in Asia, particularly in South Asia, where awareness remains low. Consequently, patients, families, and clinicians often face significant challenges in diagnosing and treating IBD. These challenges are compounded by limited treatment options, high costs, a mistrust of medical systems, and the stigma surrounding bowel diseases. By addressing these intertwined issues, SAIA aims to empower individuals and enhance healthcare delivery within the South Asian community.
SAIA’s primary goal is to unite patients and multidisciplinary clinicians from South Asia and its diaspora to tackle the significant challenges associated with IBD. Since its inception in [insert year], SAIA has sought to minimize healthcare disparities, dispel stigma, promote early diagnosis, and improve access to treatment while recognizing the cultural taboos that often delay care. A vital component of SAIA is Team IBDesis, which is dedicated to uniting and empowering South Asians living with IBD and addressing the stigma and psychosocial barriers that hinder effective treatment and support.
SAIA focuses on several key initiatives:
1. Patient Education: Developing comprehensive educational resources to empower patients and caregivers.
2. Professional Development: Enhancing the skills of multidisciplinary healthcare providers in the IBD space.
3. Research Development: Conducting and promoting research to highlight the need for improved care and treatment options.
4. Medication Access: Collaborating with pharmaceuticals and payers for more affordable medication access.
5. Clinical Trials: Establishing a robust clinical trial program to explore new treatments and therapies.
Through these efforts, SAIA, together with IBDesis, aims to support South Asians living with IBD worldwide, addressing the stigma and challenges affecting their access to care and overall well-being.
For more information:
https://southasianibd.org/
https://www.youtube.com/@southasianibd/videos
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com
-
-
85
-
0
-
907
Mohammad, Founder & CEO of the Avey App, is the father of a son with a chronic illness who aims to transform the healthcare experience.
COMMUNICATION: Communicating, whether by speaking, listening, or other means
CAREGIVING
AI algorithm
App (Including when connected with wearable)
Online service
Enhancing health literacy
Promoting self-management
To implement medical examination
Manage Medication
Preserving Organ Function
To implement a diagnostic tool
To improve Treatment/Therapy
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
General and Family Medicine
Pediatrics
Pediatric Innovations
United States
-
-
-
143
-
0
-
1476
App to help children feel comfortable while visiting the dentist
CAREGIVING
COMMUNICATION: Communicating, whether by speaking, listening, or other means
Autism
App (Including when connected with wearable)
Difficulty concentrating or making decisions
Social withdrawal or isolation
Irritability or anger outbursts
Restlessness or feeling slowed down
Panic attacks
Difficulty controlling impulses
Racing thoughts
Fatigue
Enhancing health literacy
Enhancing Mental Health
To improve Treatment/Therapy
Raise awareness
Caregiving Support
Child and Adolescent Psychiatry
Pediatrics
Japan
-
-
-
257
-
0
-
5285
Portuguese couple creates platform to centralize all information about Covid-19
-