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About the solution
A splendid group of young adults from JUNITEC - Junior Enterprises of the Higher Technical Institute gave me a hand. They developed a project for almost a year: removable thermal pockets. These pockets (attached images) are heated by a thermal pad that reacts to electricity, with power supplied by a power bank. Its aim is to turn the war against the cold - a feature very much felt by people with CMT, especially when it comes to distal limbs like feet and hands. It's a seemingly small project, but it greatly improves the quality of life of a patient. Another step against discomfort caused by CMT!
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
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Adapted and high mirror toys to encourage her daughter to put
CAREGIVING
(SELF)-CARE: GROOMING: Personal grooming, such as combing hair or shaving
STANDING UP: Standing up from a seated position
Cri du Chat Syndrome
Strategy/Tip
Restoring mobility
Promoting self-management
Preserving Organ Function
Managing Neurological Disorders
Promoting inclusivity and social integration
Maintaining Balance and Mobility
Restoring Blood Circulation
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
Child and Adolescent Psychiatry
General and Family Medicine
Neurology
Pediatrics
Physical Medicine and Rehabilitation
Portugal
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Founders of FightTheStroke develop an app to improve epilepsy management for their son
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Parents create 3D printed orthosis inspired by their son
CAREGIVING
MOVING IN A WHEELCHAIR: Moving using a wheelchair.
(SELF)-CARE: EATING: Eating independently.
(SELF)-CARE: DRINKING: Drinking independently.
Cerebral Palsy
Angelman's Syndrome
Neuromuscular Disorders
Muscle Tone Abnormalities weakness
3d Printed
Assistive Daily Life Device (to help ADL)
Body-Worn solutions (Clothing, accessories, shoes, sensors...)
Prosthesis
Difficulty coordinating movements
Gait abnormalities (e.g., walking difficulties, unsteady gait)
Loss of balance
Muscle cramps or spasms
Muscle weakness
paralysis of the legs and lower body
Stiffness or rigidity (difficulty moving)
Managing Neurological Disorders
Maintaining Balance and Mobility
Caregiving Support
Neurology
Pediatrics
United Kingdom
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This work is being financed by the FCT project with the reference PTDC/EGE-OGE/7995/2020
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OscarClements • Sat, 07/14/2018 - 07:44
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