Parents create million-dollar foundation to support their son with Duchenne muscular dystrophy

In 2001, Christine and Stephen McSherry faced a life-altering diagnosis: their five-year-old son, Jett, had Duchenne muscular dystrophy (DMD), a severe and progressive condition that weakens muscles over time, often leading to loss of mobility, respiratory issues, and a significantly shortened life expectancy. Faced with this reality, the McSherrys turned their problem into action by creating a foundation as a platform for solutions.

The Jett Foundation was established to accelerate research for a cure and to provide critical support for families navigating the challenges of DMD. Initially focused on funding research, the foundation has raised over $16 million for promising biomedical advancements. Over time, they recognized that families needed more than hope for a cure—they needed centralized immediate resources and community support.

The foundation now serves as a vital instrument for addressing the daily realities of living with DMD, offering tailored educational workshops, support groups, and financial assistance through initiatives like the Jett Giving Fund (launched in 2017), which helps families afford essential medical and accessibility equipment. Another standout program is Camp Promise, a free summer camp and year-round initiative for kids, teens, and adults with neuromuscular disorders to gather at multiple locations and in virtual events, creating an inclusive community where they can connect, interact, and have fun.

By empowering families to access resources, connect with others, and bridge gaps in care, the Jett Foundation has become an essential support network, ensuring that no one faces the challenges of Duchenne alone, regardless of their location or financial situation.

Learn more about their programs:
https://www.jettfoundation.org/