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About the solution
Katy started writing about her condition online in 2009, on her blog, then called TeenCP, which was rebranded to Cerebral Palsy Strong in 2017. She used her blog as an outlet and gained a loyal following of teenagers who were happy to find someone they could relate to, with the same problems.
“The mission of About Cerebral Palsy is to provide up-to-date, evidence-based and reliable information to assist people with cerebral palsy, their families and clinicians to understand cerebral palsy and to make informed decisions about interventions and therapies. About Cerebral Palsy is written by fully qualified health professionals, in consultation with people with cerebral palsy and their families”, says on Cerebral Palsy Strong.
At the beginning, Katy didn’t know anyone with cerebral palsy. So the website helped her feel more accepted and less lonely.
“I was able to downplay it, but growing up in Huntington Beach and Orange County, there are some insecurities of being more self-aware, and I felt like I needed extra support nobody else could provide me except for therapy,” she explained.
Adapted from: https://lat.ms/2kyTGUz
More info: https://cerebralpalsystrong.com/
https://www.youtube.com/watch?v=4YmLIt03m28
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com
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Matthew McConnell creates resource- Love From Dad- for coping with the loss of his baby.
COMMUNICATION: Communicating, whether by speaking, listening, or other means
Social interaction
infant
Social Media
Website
Strategy/Tip
Promoting self-management
Building Supportive Community Relationships
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
General and Family Medicine
Gynecology and Obstetrics
Pediatrics
Psychiatry
Parenthood Support
Mental health support
Australia
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After losing son to rare disease, woman creates project to help mothers with children with special needs
CAREGIVING
COMMUNICATION: Communicating, whether by speaking, listening, or other means
Social interaction
Neuromuscular Disorders
Strategy/Tip
Social Media
Tremors
Muscle cramps or spasms
Stiffness or rigidity (difficulty moving)
Paralysis of the legs and lower body
Muscle weakness
Loss of balance
Trouble with fine motor skills (e.g., writing, buttoning clothes)
Numbness or tingling in the extremities
Twitching or involuntary movements (myoclonus)
Seizures
Enhancing health literacy
Building Supportive Community Relationships
Promoting inclusivity and social integration
Enhancing Mental Health
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
General and Family Medicine
Neurology
Pediatrics
Psychiatry
Brazil
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Susana and Joe, parents of Caui, created the platform "Vencer o Autismo" in order to reduce the negative stigma associated with autism.
COMMUNICATION: Communicating, whether by speaking, listening, or other means
CAREGIVING
Social interaction
Autism
Social Media
Website
Strategy/Tip
Enhancing health literacy
Promoting self-management
Managing Neurological Disorders
Building Supportive Community Relationships
Promoting inclusivity and social integration
To improve Treatment/Therapy
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
Child and Adolescent Psychiatry
General and Family Medicine
Medical Oncology
Pediatrics
Portugal
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