- 5882
- 377
- 3
- 4
- 1
- Help Ukraine
About the solution
Erin was diagnosed with a rare kidney disease, focal segmental glomerulosclerosis, when she was 6 years old. At age 9, after spending, lengthy periods at hospital for treatment, she asked the hospital’s child life specialist to help her build a pillow similar with her kidneys. This creation helped her to boost her morale and after another stay at the hospital, in 2017, she decided to help other kids with kidney disease to make their own silly kidney pillows.
This was the beginning of the Silly Kidneys. Through December of 2017, the project released 75-100 pillows to kidney disease patients.
“A lot of the kids send us pictures when they’re finished,” Erin said. “It makes me really happy that they get to do the same thing I did in the hospital.”
Silly Kidney pillow kits are sent to children at home, at dialysis centres or at hospitals where they are receiving treatment. Each kit includes an empty Silly Kidney pillow and a bag of stuffing. Or, for a child who does not have the motor skills or energy to stuff their own pillow, they will get a pillow that is already made. Whether they receive a pillow that is made for them, or they make it on their own, each child will get to decorate their pillow with a smiley face.
The Silly Kidneys act as a morale’s booster for children suffering from kidney disease but it also helped Erin to build a network of her peers who understand each other and the challenges they face.
Adapted from:
https://eu.upstateparent.com/story/life/2018/04/06/kidney-patient-create...
More info:
https://sillykidneys.com
这些解决方案不应包括使用药物,化学品或生物制品(包括食品);创伤性设备;冒犯性的,商业或内在危险的内容。该解决方案未经医学验证。请谨慎进行!如果您有任何疑问,请咨询健康专家。
DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com
-
-
95
-
0
-
1531
How a familiar experience with the cancer journey leads Hua to change the paradigm with Smartbridge Health.
Breast cancer
Large cell lung cancer
Angiosarcoma recurrent
Mobile app
Perform daily routine
Helping others
Intimate relationships
CAREGIVING
App (Including when connected with wearable)
Managing pain
Enhancing health literacy
Promoting self-management
Restoring heart health
Promoting inclusivity and social integration
Enhancing Mental Health
To improve Treatment/Therapy
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
General and Family Medicine
Medical Oncology
-
-
-
257
-
0
-
2633
Cancer survivor creates chemotherapy care packages
-
-
-
115
-
0
-
1704
Memory Lane Games - Reigniting memories for those with Dementia & Alzheimer's
Dementia Alzheimer's type
Dementia
Brain
Basic interpersonal interactions
Playing
Games
CAREGIVING
COMMUNICATION: Communicating, whether by speaking, listening, or other means
App (Including when connected with wearable)
Videogame
Recovering cognitive function
Promoting self-management
Managing Neurological Disorders
Building Supportive Community Relationships
Promoting inclusivity and social integration
Enhancing Mental Health
Improving Speech and Communication
To improve Treatment/Therapy
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
General and Family Medicine
Neurology
-
rajeshrohaniya • Thu, 05/23/2019 - 04:40