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About the solution
Erin wanted his son to be able to have some fun during treatments by using his iPod, but she was having trouble using the traditional solutions.
"He gets to play on his iPod during treatments, and with having to hold the nebulizer, he's only got one hand free to play games that mostly require two hands. He does this thing with his arm where he uses it as a ledge to balance the neb, but it usually falls or spills leaving both of us feeling frustrated. A mask would be a simple solution, but we'd graduated from a mask to a mouthpiece for deep breaths and deeper medication penetration into his lungs, and also for the opportunity to utilize the Aerobika for additional positive expiratory pressure, something that helps to open his floppy airways and allow him to cough out the junk that makes him sick. Anyway, you can't use a mask with the Aerobika, so we are left trying to find ways to allow him the simple pleasure of playing on his iPod during treatments while still receiving the full benefit of the treatment", the mother explained.
So she posted the following tweet: "Still #hackinghealthcare over here. Cannot find sustainable solution. Comfort & handsfree r priorities. #makers #cf". The community responded, Erin started prototyping and then the solution was ready to use.
Eric built a device using googles, a nebulizer mouthpiece and bubbles from a fish mask.
The instructions with all the steps for making this solution can be found here: http://bit.ly/2ES3npn
More info: http://bit.ly/2CbZhHG
Adapted from: http://bit.ly/2BIcZB7
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com
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• Mon, 01/30/2023 - 01:57
Although a mask would be the obvious choice, we've transitioned to a mouthpiece to allow for more effective inhalation and medication delivery, as well as the possibility of using the Aerobika to provide positive expiratory pressure, which opens his dilated airways and encourages him to cough up the yuck that's making him sick.
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Father develops a suction device to correct his son’s funnel chest
CAREGIVING
Pectus Excavatumy
Bone Disorders (Decalcification, Bone Deformity, Bone Fracture, Bone Infection)
Treatment/Surgical device
Assistive Daily Life Device (to help ADL)
Body-Worn solutions (Clothing, accessories, shoes, sensors...)
Muscle pain or stiffness
Fatigue
Back pain
Improving respiratory function
To improve Treatment/Therapy
Caregiving Support
Cardiology
General and Family Medicine
Medical Genetics
Orthopedics
Pediatrics
Pneumology
China
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15175
Father develops computer games to help daughter with Cystic Fibrosis endure treatment
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A videogame that helps children with cystic fibrosis to take nebulizer treatments
VENTILATION
CAREGIVING
Cystic Fibrosis
Treatment/Surgical device
Videogame
Mismedication
Chest pain or discomfort
Sore throat
Fatigue
Difficulty breathing deeply
Nasal congestion
Frequent respiratory infections
Chronic cough
Productive cough (with sputum)
Sinus pain or pressure.
Shortness of breath
Improving respiratory function
Manage Medication
To improve Treatment/Therapy
Caregiving Support
Pediatrics
Pneumology
Germany
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Zubi Aleena • Sun, 06/16/2019 - 03:36
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