• 8523
  • 7
  • 7
  • 0
  • Help Ukraine

Patient Creates Documentary to Educate Others on Frontotemporal Dementia

Shared by Ana Duarte on 2015-11-29 12:03

About the solution

“Instead of going silently into that good night, my caregiver Cindy and I have dedicated two precious years of what remains of my life to creating a film, 'Planning for Hope.' Bold and arresting, it is aimed at unveiling the truth about Frontotemporal Disease, addressing the surrounding issues and controversies, and offering hope to those affected”, Susan explained.

FTD is a progressive, degenerative brain disease that gradually destroys the ability to behave appropriately, empathize, learn, reason, make judgments, communicate, and carry out daily activities. It is fatal, without apparent cause or cure; average life expectancy after diagnosis is two to eight years.

Because of the lack of awareness for the disease and education on diagnosing the signs and symptoms, Grant spent two years creating the documentary film.

“I wanted a film because I didn’t want people to go through what I went through,” Grant said. “I want people to get diagnosed early, so they can get the proper medications to control symptoms and have a better quality of life for their remaining years.”

The film aired 2011, and it features personal stories from six families, as well as researchers from University of Pennsylvania, University of Colorado at Colorado Springs, and Mayo Clinic. Because of the implications of the disease striking younger people, the film’s producers also included insights from lawyers, and financial and estate planners.

More info: http://ftdplanningforhope.com/

Adapted from: http://bit.ly/2iFGvep

This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.

DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com

About the author

Susan Grant, born in 1961, from USA, suffers from Frontotemporal Dementia (FTD), and created a one-hour documentary Planning for Hope: Living with Frontotemporal Disease, to educate others on this disease.

Like solution
Close en