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About the solution
Multiple sclerosis (MS) is a condition which can affect the brain and/or spinal cord, causing a wide range of potential symptoms, including problems with vision, arm or leg movement, sensation or balance. When Jason had his MS diagnosis at age 25 he decided to start documenting his disease progression on camera.
“I wanted to capture this transformative experience—becoming disabled—in WHEN I WALK because I hadn’t seen it done before, and people need to see how a degenerative disease impacts the lives of those living with it.”, says Jason about his documentary.
After 5 years, Jason, lost his mobility and became dependent on a mobility scooter. This new reality brought him the challenges of performing routine activities on a city that sometimes is not prepared for mobility devices. Jason knew he had to do more, he had to act. So, he and his wife, Alice, decided to create a map, AXS Map (access map), to rate businesses and places based on their accessibility and that could be used by everyone.
“When Jason lost the ability to walk he lost the ability to go to a lot of places,” said Alice. “And he had the idea that it would be amazing if people could see if a place is accessible before going there.”, mentioned Alice.
AXS Map aims to combine different opinions and points of view on one shared network, both creating a workable resource for and reinforcing a community of people who care about access and inclusion.
“We wanted the reviews to be really simple and something that anyone can do,” said Alice. “We didn’t want the review process to be onerous on the user. So we made it into something that takes just a second of your time.”, said Alice.
In 2011, a prototype of AXS Map was created based on grants from Google Earth Outreach and other foundations. From then, Jason and AXS Lab have been working to refine the map, spread the word about AXS Map and encouraging organisations and individuals to contribute to the database.
Adapted from: https://www.fastcompany.com/3042583/a-ms-patient-builds-a-yelp-for-peopl...
More info: http://wheniwalk.com/axs-map/
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com
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Father creates walking aid for his son
WALKING: Walking
WALKING WITH A WALKING AID: Walking with a walking aid
CAREGIVING
Cervical spinal cord injury/Tetraplegia
Walking Aid (wheelchair/walker/crutches)
Restoring mobility
Promoting self-management
Preserving Organ Function
Rehabilitating After Stroke
Managing Neurological Disorders
Recovering from Traumatic Injuries
Maintaining Balance and Mobility
To improve Treatment/Therapy
Raise awareness
Caregiving Support
General and Family Medicine
Internal Medicine
Neurology
Pediatrics
Physical Medicine and Rehabilitation
Argentina
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Access Lab - a groundbreaking initiative that strives to ensure access to culture for people with disabilities and the deaf
WALKING: Walking
WALKING WITH A WALKING AID: Walking with a walking aid
MOVING IN A WHEELCHAIR: Moving using a wheelchair.
BODY BALANCE: Maintaining body balance
Attend Concerts/Performances
Website
Restoring mobility
Enhancing health literacy
Promoting self-management
Building Supportive Community Relationships
Promoting inclusivity and social integration
Enhancing Mental Health
Maintaining Balance and Mobility
Improving Speech and Communication
General and Family Medicine
Neurology
Occupational Medicine
Physical Medicine and Rehabilitation
Rheumatology
Mobility issues
Solutions for Disabled people
Portugal
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1934
Innovative new information presentation platform, Tailored Talks. Developed in partnership with NHS Lothian
CAREGIVING
Reading
Studying
Brain Stroke
Website
App (Including when connected with wearable)
AI algorithm
Chest pain or discomfort
Fatigue
Numbness or weakness in the legs
Fainting or loss of consciousness
Irregular heartbeat (arrhythmia)
Chest tightness/pressure
Palpitations
Enhancing health literacy
Promoting self-management
Restoring heart health
Rehabilitating After Stroke
Building Supportive Community Relationships
Promoting inclusivity and social integration
Enhancing Mental Health
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
General and Family Medicine
Intensive Care Medicine
Internal Medicine
Psychiatry
United Kingdom
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