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Doente cria kit de ferramentas para educar outras pessoas sobre convulsões

Partilhado por Ana Duarte a 06/11/2019 - 14:00

Sobre a solução

Dylan sofre de crises parciais complexas, que afetam a sua consciência e podem fazer com que ela perca a consciência. Por causa disso, ela sofre convulsões epilépticas há mais de uma década.

"Depois de enfrentar muita discriminação, percebi que as pessoas ouviram falar de epilepsia, mas não têm ideia do que fazer quando ouvem alguém com epilepsia. Sei em primeira mão dizer às pessoas que tenho epilepsia, elas imediatamente surtam." Foi isso que inspirou para fazer este Epilepsy Toolkit. Você terá um aluno na sua turma ou alguém na sua escola que tenha epilepsia e as pessoas não sabem como lidar com isso”, explicou o inovador.

A gravidade das crises epilépticas varia de acordo com o doente; portanto, ela queria encontrar uma maneira de ajudar outras pessoas a entender o que é uma convulsão e como elas podem ajudar.

O kit de ferramentas possui um panfleto informativo, um cronómetro (para que alguém possa medir o tempo da convulsão) e um dispositivo de áudio que fornece instruções sobre o que fazer no caso de uma convulsão.

"O mais importante neste kit de ferramentas é um panfleto que descreve os tipos comuns de convulsões, junto com as instruções de primeiros socorros", disse Di Girolamo.

O kit de ferramentas foi inscrito na competição IDeA organizada pelas Universidades do Canadá. Ela ficou em segundo lugar na categoria Barreiras Atitudinais / Sistémicas, levando para casa $ 1.500.

Cada kit de ferramentas tem um custo de desenvolvimento de cerca de US $ 15, com a opção de adicionar um ursinho de peluche.

Dylan lançou uma campanha de crowdfunding para ajudar a tornar essa invenção "uma realidade".

Adaptado de: https://bit.ly/2JW96vr

Mais informações: https://www.gofundme.com/f/epilepsy-toolkit
https://www.youtube.com/watch?v=t4Xx_gTo0P0

Esta solução não deverá mencionar o uso de drogas, químicas ou biológicas (incluíndo alimentos); dispositivos invasivos; conteúdo ofensivo, comercial ou inerentemente perigoso. Esta solução não foi validada medicamente. Prosseguir com atenção! Em caso de dúvidas, por favor consulte um profissional de saúde.

Isenção de responsabilidade: Esta solução foi escrita por alguém que não é o autor da solução, portanto, pedimos esteja ciente de que, embora tenha sido escrita com o maior respeito pela inovação e pelo inovador, pode haver algumas declarações incorretas. Se encontrar algum erro, entre em contacto com a equipa do Patient Innovation via info@patient-innovation.com

Sobre o autor

Dylan Di Girolamo, que vive no Canadá, sofre de convulsões. Ela era estudante quando desenvolveu um kit de ferramentas para epilepsia para ajudar a lidar com as convulsões.

Categorias associadas a esta solução

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)
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