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About the solution
Molly suffers from the most sever form of Spina Bifida, Myelomeningocele, which causes parts of the spinal cord and nerves to come through an open part of the spine, causing nerve damage.
Collecting urine samples from Molly was an imperative part of detecting any conditions that the little girl might have but it was nearly impossible to collect from the wiggling and impatient 3-year-old.
Gotbeter tried other solutions like using a zip lock bag, but she needed something drastic. “The only other way to get urine, besides going in a cup, is to be catheterized,” Gotbeter said. “It’s extremely traumatic for the child.” That’s when Molly started to think about other possibilities.
“I had the idea and at my mom’s kitchen table we literally drew it out,” she said. “My mom drew it out on a lined piece of paper with a pencil and I laminated it and then I typed up something and laminated it and then I hooked them together with an O-ring to make it look as professional as possible.”
The design was sent to Jesse Goodwin, the associate director of the Foundation of Research Development (FRD) at MUSC, where she was able to help Gotbeter turn her drawing into a reality.
The device, which fastens over the toilet seat via an elastic band around the outside has a collection bowl at the bottom where the urine pools.
“You break the plastic seal on the bottom and it just drains out,” Goodwin answered as she carefully showed off the invention. The elastic band can also be stretched to fit over a regular toilet seat as well.
The prototype is ready, and Gotbeter hopes that it will be available to the public soon.
Adapted from: http://bit.ly/1KmCFvH
What about you, do you have any solutions? Please share them with the Patient Innovation community!
这些解决方案不应包括使用药物,化学品或生物制品(包括食品);创伤性设备;冒犯性的,商业或内在危险的内容。该解决方案未经医学验证。请谨慎进行!如果您有任何疑问,请咨询健康专家。
DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com
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Levity, a catheter stabilizer invented by a worried mother
CAREGIVING
(SELF)-CONTROL: URINARY CONTINENCE: Maintaining urinary continence
Spinal Cord and Nerve Root Disorders
Walking Aid (wheelchair/walker/crutches)
Enhancing health literacy
Promoting self-management
Preserving Organ Function
To improve Treatment/Therapy
Raise awareness
Caregiving Support
Intensive Care Medicine
Neurology
Pediatrics
Urology
United States
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345
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6384
Parents help to invent treatment for her daughter’s rare disease
CAREGIVING
Spinal Cord and Nerve Root Disorders
Cerebral Palsy
Neuromuscular Disorders
Pharma
Treatment/Surgical device
Muscle cramps or spasms
Difficulty coordinating movements
Stiffness or rigidity (difficulty moving)
Paralysis of the legs and lower body
Muscle weakness
Cognitive impairment
Sleep disturbances
Managing Neurological Disorders
To improve Treatment/Therapy
Caregiving Support
Medical Genetics
Neurology
Pediatrics
France
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294
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3
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5475
Mother develops app to help daughter who suffers from Down Syndrome
COMMUNICATION: Communicating, whether by speaking, listening, or other means
CAREGIVING
Down Syndrome (Trisomy 21)
App (Including when connected with wearable)
Treatment/Surgical device
Promoting self-management
Improving Speech and Communication
To improve Treatment/Therapy
Raise awareness
Caregiving Support
Medical Genetics
Pediatrics
Brazil
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