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About the solution
The project shares photos and videos from Milagro's first five years of life. And how her parents encouraged physically challenging activities to stimulate her development.
Tiscareno-Sato decided to offer the DVD as a resource to help families raise blind children and in hopes of changing the perception of blindness.
Graciela Tiscareno-Sato and her family believe that a disability does not define Milagro, whose name means "miracle" in Spanish. Milagro survived a premature birth at 25 1/2 weeks. Even though she's blind, her parents committed early on to raise her with as normal a childhood as possible.
"She loves horseback riding, downhill skiing," said Graciela Tiscareno-Sato. Climbing walls, gymnastics - you name it. Milagro loves movement and exploring the environment around her.
Graciela had never met any other blind people until her daughter lost her sight. "There were no blind people in my universe," she said. "The shock of suddenly having to accept the new role of being mother to a blind child is beyond shocking”, she explained.
Hearing how her own journey has made an impact on other families has inspired Tiscareno-Sato to keep moving forward with her project.
"We're out to change the status quo perception of blindness and blind people," Tiscareno-Sato said. "We're showing what our daughter is capable of; she's our best evidence. We want all blind people to be respected, understood and not pitied."
Adapted from: http://bayareane.ws/2tzUrf6
More info: http://www.babymilagro.org
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com
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Parents make documentary about their son’s disease
Watching movies
COMMUNICATION: Communicating, whether by speaking, listening, or other means
Congenital Defects (Coarctation of the Aorta, Dextrocardia, Septal Defects)
Film
Difficulty lying flat or needing to prop up with pillows at night (orthopnea)
Fatigue
Shortness of breath
Discoloration of the lips or extremities (cyanosis)
Enhancing health literacy
Promoting inclusivity and social integration
Raise awareness
Caregiving Support
Pediatrics
Pneumology
Poland
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170
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1522
Teen illustrates books to deal with her condition
COMMUNICATION: Communicating, whether by speaking, listening, or other means
Social interaction
Reading
Treacher Collins Syndrome
Book/Comic
Enhancing health literacy
Building Supportive Community Relationships
Promoting inclusivity and social integration
Raise awareness
Child and Adolescent Psychiatry
Medical Genetics
Pediatrics
United States
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125
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1721
Susana and Joe, parents of Caui, created the platform "Vencer o Autismo" in order to reduce the negative stigma associated with autism.
COMMUNICATION: Communicating, whether by speaking, listening, or other means
CAREGIVING
Social interaction
Autism
Social Media
Website
Strategy/Tip
Enhancing health literacy
Promoting self-management
Managing Neurological Disorders
Building Supportive Community Relationships
Promoting inclusivity and social integration
To improve Treatment/Therapy
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
Child and Adolescent Psychiatry
General and Family Medicine
Medical Oncology
Pediatrics
Portugal
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