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About the solution
After being diagnosed with ulcerative colitis (UC) in 2008, Seb spent many years unaware of exactly what UC was and the impacts it could have on his life. He decided to start doing some research to learn more about inflammatory bowel diseases (IBD) and change elements of his lifestyle to try to improve the debilitating symptoms he was living with, despite his medications. He found the information available overwhelming. It was very fragmented and in so many different places. It was often conflicting or very complicated. But, as he started to gradually filter through it, he found some of it was incredibly useful in helping to improve his quality of life.
To try to make life easier for others affected by IBD to find this information and make their own decisions about it, Seb and his wife Emily decided to create a support platform for those living with IBD....and in 2015 IBDrelief was born!
IBDrelief.com is for everyone and anyone affected by IBD - this includes people who have IBD, their families, their friends, healthcare professionals and researchers. The goal is to support, inform, connect and educate people about IBD, as well as improve the quality of life for those affected by it. This includes services as:
- Creation of digital solutions, and patient education and support materials
- Patient engagement
- Patient recruitment for studies and trials
- Campaigns and PR
- Market research and insights
- Keynote speaking and mentoring for disease awareness
To help with the start up costs Seb and Emily ran a successful crowdfunding campaign in August 2015. The money raised from the campaign went towards building the website and developing the first pieces of content. The site was launched in February 2016 and since then has received over 4 million page views from around the world and counting. IBDrelief now employs several people with inflammatory bowel diseases.
Adapted from: https://www.ibdrelief.com/
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com
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Christyn and her daughter Rebecca Taylor created Camp Hope, a free, overnight summer camp tailored for children with pancreatitis.
CAREGIVING
Social interaction
COMMUNICATION: Communicating, whether by speaking, listening, or other means
Hiking
Football
pancreatitis
In Person service
Treatment/Surgical device
Educational/Leisure device (book, toy, game...)
Managing pain
Promoting self-management
Manage Medication
Building Supportive Community Relationships
Promoting inclusivity and social integration
Enhancing Mental Health
To improve Treatment/Therapy
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
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CAREGIVING
Social interaction
Blood Pressure Disorders
Website
In Person service
Online service
Book/Comic
Managing pain
Enhancing health literacy
Promoting self-management
Building Supportive Community Relationships
Promoting inclusivity and social integration
Enhancing Mental Health
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Caregiving Support
Child and Adolescent Psychiatry
Dermatology
General and Family Medicine
Internal Medicine
Medical Oncology
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CAREGIVING
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In Person service
Promoting self-management
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Enhancing Mental Health
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Raise awareness
Caregiving Support
General and Family Medicine
Psychiatry
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