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Patient and his wife create support platform for people affected by inflammatory bowel disease (IBDrelief)

Shared by Maria João Jacinto on 2023-02-23 15:04

About the solution

After being diagnosed with ulcerative colitis (UC) in 2008, Seb spent many years unaware of exactly what UC was and the impacts it could have on his life. He decided to start doing some research to learn more about inflammatory bowel diseases (IBD) and change elements of his lifestyle to try to improve the debilitating symptoms he was living with, despite his medications. He found the information available overwhelming. It was very fragmented and in so many different places. It was often conflicting or very complicated. But, as he started to gradually filter through it, he found some of it was incredibly useful in helping to improve his quality of life.

To try to make life easier for others affected by IBD to find this information and make their own decisions about it, Seb and his wife Emily decided to create a support platform for those living with IBD....and in 2015 IBDrelief was born!
IBDrelief.com is for everyone and anyone affected by IBD - this includes people who have IBD, their families, their friends, healthcare professionals and researchers. The goal is to support, inform, connect and educate people about IBD, as well as improve the quality of life for those affected by it. This includes services as:
- Creation of digital solutions, and patient education and support materials
- Patient engagement
- Patient recruitment for studies and trials
- Campaigns and PR
- Market research and insights
- Keynote speaking and mentoring for disease awareness

To help with the start up costs Seb and Emily ran a successful crowdfunding campaign in August 2015. The money raised from the campaign went towards building the website and developing the first pieces of content. The site was launched in February 2016 and since then has received over 4 million page views from around the world and counting. IBDrelief now employs several people with inflammatory bowel diseases.

Adapted from: https://www.ibdrelief.com/

This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.

DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com

About the author

IBDrelief was created in 2015 by husband and wife team Seb and Emily Tucknott with a website to provide more information about IBD to patients. When Seb was diagnosed with ulcerative colitis in 2008 he found very little support or information to help him on his journey of learning to live with the disease. With his skills as a web developer and Emily’s content and communications background they decided to start their own information website to help fill this gap.

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