• 6740
  • 1
  • 1
  • 0
  • Help Ukraine

Parents make documentary about their son’s disease

Ana Duarte 于 2015-12-13 18:53 分享

About the solution

“We really felt our life ended at that time,” Śliwiński told TODAY. “We thought we had to be locked at home with Leo, have no friends, so filming was therapy for us.”

The documentary, called “Our Curse”, shows the first six months in the life of his son Leo.

The footage includes frank conversations between Śliwiński and Hueckel on the couch in their Warsaw home with Śliwiński going so far as to express his concern that his son may commit suicide when he’s able to understand his disability.

“The therapy is over and we have to start living. It was natural we had to stop shooting this and start enjoying life as fully as we can” the father said.

Our Curse was nominated for the Academy Award for Best Documentary (Short Subject) at the 87th Academy Awards.

Adapted from: https://www.disabilityscoop.com/2015/02/17/oscar-contender-parents-copin...

What about you, do you have any solutions? Please share them with the Patient Innovation community!
https://www.youtube.com/watch?v=A-LnRaf13N0

这些解决方案不应包括使用药物,化学品或生物制品(包括食品);创伤性设备;冒犯性的,商业或内在危险的内容。该解决方案未经医学验证。请谨慎进行!如果您有任何疑问,请咨询健康专家。

DISCLAIMER: This story was written by someone who is not the author of the solution, therefore please be advised that, although it was written with the utmost respect for the innovation and the innovator, there can be some incorrect statements. If you find any errors please contact the patient Innovation team via info@patient-innovation.com

关于发明者

Tomasz Śliwiński, born in 1979, and Magda Hueckel, in 1978, in Poland, have a son, Leo, who suffers from Ondine’s Curse, a congenital central hypoventilation syndrome. They made a documentary about how to deal with this disease. People afflicted with Ondine's curse classically suffer from respiratory arrest during sleep. This film was nominated for Best Documentary, Short Subject, by the Academy, on 2015.

喜欢该发明
Close zh
Close