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About the solution
A splendid group of young adults from JUNITEC - Junior Enterprises of the Higher Technical Institute gave me a hand. They developed a project for almost a year: removable thermal pockets. These pockets (attached images) are heated by a thermal pad that reacts to electricity, with power supplied by a power bank. Its aim is to turn the war against the cold - a feature very much felt by people with CMT, especially when it comes to distal limbs like feet and hands. It's a seemingly small project, but it greatly improves the quality of life of a patient. Another step against discomfort caused by CMT!
This solution shall not include mention to the use of drugs, chemicals or biologicals (including food); invasive devices; offensive, commercial or inherently dangerous content. This solution was not medically validated. Proceed with caution! If you have any doubts, please consult with a health professional.
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Parents create 3D printed orthosis inspired by their son
CAREGIVING
MOVING IN A WHEELCHAIR: Moving using a wheelchair.
(SELF)-CARE: EATING: Eating independently.
(SELF)-CARE: DRINKING: Drinking independently.
Cerebral Palsy
Angelman's Syndrome
Neuromuscular Disorders
Muscle Tone Abnormalities weakness
3d Printed
Assistive Daily Life Device (to help ADL)
Body-Worn solutions (Clothing, accessories, shoes, sensors...)
Prosthesis
Gait abnormalities (e.g., walking difficulties, unsteady gait)
Muscle cramps or spasms
Difficulty coordinating movements
Stiffness or rigidity (difficulty moving)
Paralysis of the legs and lower body
Muscle weakness
Loss of balance
Managing Neurological Disorders
Maintaining Balance and Mobility
Caregiving Support
Neurology
Pediatrics
United Kingdom
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283
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0
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4548
CAPR-Style – Adaptive clothing for disabled people
CAREGIVING
(SELF)-CARE: DRESSING: Dressing independently.
Incontinence
Cerebral Palsy
Cervical spinal cord injury/Tetraplegia
Body-Worn solutions (Clothing, accessories, shoes, sensors...)
Strategy/Tip
Promoting self-management
Managing Neurological Disorders
Promoting inclusivity and social integration
Recovering from Traumatic Injuries
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Caregiving Support
Medical Genetics
Neurology
Pediatrics
Rheumatology
United Kingdom
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223
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0
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3654
Mother creates weighted cape to help her special needs daugther
CAREGIVING
Urban exploration
COMMUNICATION: Communicating, whether by speaking, listening, or other means
Post traumatic stress disorder (PTSD)
Anxiety
Body-Worn solutions (Clothing, accessories, shoes, sensors...)
Anxiety
Social withdrawal or isolation
Irritability or anger outbursts
Restlessness or feeling slowed down
Panic attacks
Racing thoughts
Feelings of guilt or worthlessness
Suicidal thoughts or behaviors
Obsessive thoughts or compulsive behaviors
Hallucinations (perceiving things that aren't there)
Sleep disturbances
Managing pain
Promoting self-management
Managing Neurological Disorders
Promoting inclusivity and social integration
Enhancing Mental Health
Improving Speech and Communication
To improve Treatment/Therapy
Preventing (Vaccination, Protection, Falls, Research/Mapping)
Raise awareness
Child and Adolescent Psychiatry
Neurology
Pediatrics
Physical Medicine and Rehabilitation
United States
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This work is being financed by the FCT project with the reference PTDC/EGE-OGE/7995/2020
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